Update: Corneal Rejection and New Symptoms
I’ve had lots of changes in my life since part 1 of ‘Fuchs Corneal Dystrophy – My Story’. After living in South Florida for 13 years, I moved back to Central New York in June (see post). It’s been quite an adjustment between getting used to the weather, which I love by the way (until winter), to reconnecting with old friends and family that I haven’t seen in years.
While my living situation is falling into place, I’m sorry to say my vision is deteriorating once again. Two years after the second partial corneal transplant in my right eye I’ve recovered from several near and total cornea rejections (I guess from having such a great immune system) and now I sit here writing this post using my ‘good’ eye to view the screen. The sight in my right eye has reverted back to before the transplants.
I made an appointment with Dr. Robert Arleo, a reputable ophthalmologist in Ithaca who did several tests and immediately referred me to Dr. Robert Weisenthal in Syracuse. Unfortunately, I couldn’t get an appointment until August 25, so I’ve put myself on a regimen of Prednisolone (steroids) eye drops and Muro 128 drops and ointment.
Dr. Arleo seems to think I should have a ‘full’ corneal transplant this time round, but we’ll have to see what Dr. Weisenthal thinks. Thoughts of undergoing another transplant and possibly another lengthy recovery period makes me nauseous, but I have to consider myself lucky to have an eye condition has options other than total blindness. Some people don’t have choices.
I’ve been gathering as much information online as before I see Dr. Weisenthal on August 25th. Knowledge is power, right?
Dorothy’s story has confirmed many problems that I’ve since my transplants. Her systems were before her transplant.
2. Bending over (i.e., gardening, cleaning, etc.)
3. Crying. This is the worst because it’s very depressing to lose sight in your eye. Sometimes it’s worth crying about.
4. Hot, humid and rainy days.
I’ll post again after my doctor’s appointment on August 25th, but in the meantime, if you have FUCHS’ Corneal Dystrophy or are experiencing symptoms, please feel free to comment. Also visit the Fuchs Dystrophy site to find out more about symptoms and options.